Category: Uncategorized
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Another Yield….
My this journey seems to be full of unexpected twists and turns. Today while having a routine pouch change – we are being trained by the ostomy nurse as we need to do it independently before leaving Vancouver – the nurse noticed that Ryleigh’s output was not normal for an…
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Ryleigh, keep it up!
The last few days have had moments of laughter, tears, frustration, and some anger. One thing that was made very clear to me today by Ryleigh’s psychologist here at BCCH is that Ryleigh’s determination and strong will has helped her make it this far in getting better. Ryleigh has developed…
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Recovery…slow and..??
The recovery process continues to be challenging. This time around Ryleigh is managing her pain better. But, she is way more fatigued and weary. Her sense of perseverance has dwindled and she finds encouragement and being enthusiastic annoying. So we are quietly cheering on the edges of the room. Ryleigh…
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Recovery Day 1
Ryleigh had a relatively good night after her surgery. It was much better than her first night after her last surgery. Ryleigh is coping better with the pain and knows that if she moves, rests, moves she will recover faster. She is really chatty and is telling lots of stories…
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Ryleigh out of surgery!
Ryleigh is out of surgery and did remarkably well. She had two spots that had bowel obstructions due to scarring. They had to remove her stoma and work on the spots and then create a new stoma. She will need to go through the same process of recovery as before. Some…
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Still Waiting…
Ryleigh will be having surgery today. She cannot have surgery until after 3 as they have to make sure she is safe because they had to turn off her anticoagulant. It didn’t happen until 10:30 Ryleigh improved a bit on Sunday but actually went downhill a bit with her output…
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A Reminder of Home…
This is our ninth week in a row of being here. I had heard there was a Tim Horton’s some where on site. With the help of a neurology med student toting a Timmies coffee ( we recognized from Ryleigh’s earlier care) , we got directions and I am enjoying…
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Surgery #2
It was determined that Ryleigh will need to have surgery unless in the next 12 hours or so she shows a remarkable recovery. She has only improved a little bit and the team of doctors would expect after the regime she is enduring right now with the NG tube she…
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Keeping
Ryleigh is making slow improvements. We still have to wait and see if she is getting better. The surgeons were in today and happy with some of the small progressions to recovering from her blockage. It looks like the “kink” or partial blockage may be working itself out. This is…
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Waiting….again!
Another long day ahead of us…this treatment regime is a slow paced one to help the bowel rest. I am routinely checking Ryleigh’s pouch eager to see how much is going through her bowel. Small amounts are coming through so it is good. Hopefully a few more days of this…
WiseMindedLiving 