WiseMindedLiving

Category: Uncategorized

  • Comfortably Uncomfortable

    After a day of tests and procedures Ryleigh is as comfortable as she can be. Her NG tube is helping get rid of bile that is in her tummy so her vomiting has stopped. Her morphine is given every 4 hours – keeps the pain dulled for her. She needs…

  • Tough Nite/Tough Day

    Ryleigh has finally settled into a sleep after not sleeping at all last night.  She was vomiting and in pain most of the night despite medication to try to help it.  At around 1:30 in the morning they placed a tube down her nose – throat- tummy to suction out…

  • Tired of seeing my girl in pain….

    It is 2:00 am in the morning and I am by Ryleigh’s bedside.  She cannot sleep because she is in pain.  She has been vomiting all evening and they have switched back to IV morphine to help her with the pain.  Not sure what is going on…they are trying to…

  • Whew…

    It has been a whirlwind this week.  I thought that as Ryleigh recovered from surgery my responsibilities would decrease as a nurse/advocate and become more mother.  However the last few days has been filled with meetings with health care professionals who are helping us make the transition to leaving the…

  • Some TLC

    Ryleigh’s hair was fixed! Amazing how there are ways to make patients feel more comfortable. This hair washing basin is designed for washing hair in a bed. Ryleigh loved it and her hair became much tamer. Ryleligh is slowly starting to walk more. She is still attached to her IV…

  • Our Ryleigh is coming back!

    With the help of a knowledgeable nurse and a helpful sister and a mom who took a back seat, Ryleigh got out of the room that she has been in for 7 days. She is still unsteady on her feet but is starting to be herself again- how I missed…

  • Every Day is a Start Over….

    The last few days have been very draining and trying for all of us. Ryleigh just could not seem to be making progress – her heart rate is up, her appetite has not returned, she was not moving, and was miserable. It was becoming very challenging because she was in…

  • Distraction

    Ryleigh is starting to make a come around. She is still very sore and stuck to a bunch of lines and machines but she had a few moments of distraction. Reluctantly, she participated in an activity with the child life worker. She did not want to do anything but sleep…

  • Slow and steady

    I realize I have not updated in a couple of nights. It has been quite the few days.  Ryleigh’s recovery has not been typical and we are slowly helping her get better.  Ryleigh continues to have a great team behind her.  The surgeons and pain management doctors are on the…

  • Gratitude

    I have had a challenging time but hold onto these ideals to make it through each challenging moment. I feel so much love and gratitude towards all my friends, family, colleagues, community members, students, parents, doctors, nurses, and many others who have helped our family. It is what gets me…