Tired of seeing my girl in pain….


It is 2:00 am in the morning and I am by Ryleigh’s bedside.  She cannot sleep because she is in pain.  She has been vomiting all evening and they have switched back to IV morphine to help her with the pain.  Not sure what is going on…they are trying to get her comfortable and then hopefully in a few hours the team will be back to figure out what is going on. 

To top it off she had to have a tube put down her stomach to remove anything in her tummy so that she would not throw up anymore.  Dehydration is an issue because her small intestine is still learning how to absorb necessary fluid and her body will always need to be well hydrated to compensate.  Her tummy is also a bit distended and the nurse has told the surgeon on call about that.  Ryleigh has had an NG tube before and hated it but was quick to say yes to this one because she was so nauseous.  She continues to astound me by her bravery and courage.  No matter what comes her way she seems to manage to make it through with dignity and the resolve to carry on. 

I am at the end of the rope and holding on tightly.  We spent most of Thursday planning and talking about what we were going to do as our little unit of three was going to be together again.  It is  so unfair as I don’t imagine Ryleigh will be going home tomorrow until things are figured out.  This is night two of the both of us not getting much sleep.  Thank goodness for Chloe who gets some sleep and then comes here ready to help and take care.

  I can only guess what is wrong – it could be a blockage, tear, infection….I refuse to borrow trouble and trust that this too will be taken care of by the medical professionals and I will continue to be the mom…I will keep posting when I can to inform.  I hope this is just a little bump along the way that has a quick and easy solution. 

About WiseMindedLiving

Mindful living and a thoughtful attitude are the focus for Johanna as she navigates the paths of life that are sometimes daunting. Her journey as a mother and educator are interwoven as they are the primary motivators for her stories, reflections, and wondering.

4 thoughts on “Tired of seeing my girl in pain….

  1. Your level headedness and bravery make me so proud to know you! Keep hanging on Jo! And I know you will, for you are the mom. Don’t forget to go for walks and get some respite; “No one ain’t happy if momma ain’t happy!” You are carrying a tremendous load. Strength and courage to you today! Healing and peace for Ryleigh. Hugs!

  2. I was so happy to see you and Chloe today. Seems frustrating to not do more. I should’ve taken u outside for some sunshine. Do me a favor and step outside!! It’s amazing out here!!!

  3. Hugs and prayers for Ryleigh and you, take care. I believe you have a large prayer circle around you all the time.

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