
Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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A Hopeful Day!
This is how our day ended today: <! Ryleigh with her rosie cheeks. She is starting to show the side effects of prednisone – her cheeks are puffy. She hates that but I think it makes her look healthier! Ryleigh chooses to do artwork especially painting to relax as she had another busy day. The Read more
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Another Blip on the Radar…
After a quiet weekend this was a bit more of an active day. Ryleigh had visits from some of her medical team. Her leg has reduced in swelling on her bottom half of her leg. Her upper thigh is still quite swollen but the pain has reduced significantly. Her blood clot will take months to Read more
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The love of a dog…Jakob
Our Jakie is such gentle and kind dog. I would have never thought that when Chloe showed me the website with Jakob as a puppy and convinced me that he would be a good addition to our family. Little did I know that visiting with Jakob would be the incentive for Ryleigh to get out Read more
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Calm Day…Finally
Today was a much calmer day. Ryleigh has stabilized and is more animated and cheery. We spent the day hanging out – being a Saturday we did not have as many visits from doctors as during the week. There has been a switch over of doctors, fellows, and residents for most of the teams Ryleigh Read more
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Daily Life has changed…and progress update
I apologize for the delay in my writing. It is amazing to me how things get busy yet it feels like I don’t accomplish much. Our daily routine is so much different but yet it surprises me how patterns develop in the way we behave. Typically I am up sometime before 7. I have always Read more
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Small Steps
Ryleigh has been ever more courageous. She has realized that pain management is not about being weak or not “sucking it up”. In fact, she realizes that asking for help and receiving help is a brave thing to do. Ryleigh is now on some managed pain relief and she is more active and upbeat. Tonight Read more
