After a quiet weekend this was a bit more of an active day. Ryleigh had visits from some of her medical team. Her leg has reduced in swelling on her bottom half of her leg. Her upper thigh is still quite swollen but the pain has reduced significantly. Her blood clot will take months to get smaller but it is not causing her a lot of pain. Her heparin treatment still continues but in a while she will be taken off of it and put on a different type of heparin that involves injections twice a day. We probably won’t start that until Friday when Ryleigh’s favourite nurse returns back to work. I know Ryleigh will be quite scared about the injections and will need support from somebody she trusts.
The last couple of days Ry’s tummy has been getting bigger. The first day we thought it was just the common bloating from the prednisone but over the last day/night her tummy has gotten bigger. There is no pain but just a tummy that is tight and quite distended. There was not a concern about it until it started getting bigger AND there was a change in her white blood cell count (almost double the amount and her liver enzymes are high. So, tomorrow she has an ultrasound of her tummy especially her liver.
Ryleigh will also be getting a blood transfusion – her hemoglobin continues to be low. Also her heart rate is very high — her heart rate goes between 127-174. The median range is 147. They feel this is because her hemoglobin is low. Hopefully the transfusion will help her want to be more active and reduce her heart rate.
Tomorrow is another day — we will see what happens.