Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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Doctors are certain….they are uncertain!
There was a collaboration meeting today of some of the major teams involved in Ryleigh’s care. They have determined that they know that right now, they are not sure what has caused her medical issues. They are still investigating and that the results are going to take awhile to compile. They have different theories but Read more
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24 hours with no surprises!!!
We have made it without any new surprises! What a relief. Ryleigh’s pain is being managed. She is much more comfortable and is less irritable. We requested that Ryleigh have a more quieter atmosphere. Loads of doctors don’t crowd her room now. We have lots of discussions in the hall. Ryleigh’s care is being looked Read more
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Keeping Positive….even when I want to scream!!!
I learned a lot about myself in the last 24 hours. I learned that we all have limitations but they do not define the true essence of who we are. Ryleigh finally settled down to sleep around 5:30 this morning She is struggling physically and now emotionally about her illness. Due to many reasons including Read more
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When things get tough, the tough go to ice cream!
This post title was brought to you by Ryleigh! She came up with this at 10:00 tonight after the hardest day she has had yet. 15 doctors A lumbar puncture An ultra sound of her leg An echo cardiogram of her heart A second I.V. in her foot And the harsh reality of what is Read more
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Small Joys
Ryleigh has shown me the importance of the small moments in a day that are joyful and happy. She is still embarrassed about her palsy on the right side of her face but still cracks the funny jokes, smiles her half smile, and gives me a wink — so uplifting. Last night she was given Read more
WiseMindedLiving 