Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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Slow and Steady…
Another day closer to us coming home. We had a very laid back day – I seem to have a bit of a bug although I am wondering if it is adrenaline withdrawal?!!! The last weeks have been so intense that just having some down time is a different feeling. Ryleigh and I ventured out… Read more
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We all need something to lean on….
Today was a wet and rainy day but it wasn’t cold and snowy. Ryleigh was up very late last night — we got watching some television and she got really into reading Catching Fire (part 2 of the Hunger Games series). The steroid, prednisone, keeps her up too even when she is feeling tired. Last… Read more
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Don’t mess with a girl on prednisone and her pancakes!
It is so odd to go from having Ryleigh only eating 500 calories a day to 500 calories as a snack! The change in her eating habits because of prednisone is unreal. One morning she ate 3 pancakes, 3 eggs, and 6 sausages! We travel to IHOP every morning on the #17 bus so that… Read more
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Transition
I found out that Easter Seals House has WIFI – it just does not work in our room. I can sip my instant Starbucks in the common area on our floor and blog. We are in a transition time now. Ryleigh has been out of the hospital for 24 hours now. At first she was… Read more
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Off the grid until Saturday
Ryleigh has been discharged but she needs to stay here for a couple more weeks. She has a remicade treatment on the 13th. As well we need to keep an eye on her for bleeding and neurological changes. She also needs reconditioning which will involve short outings and walks. Easier to do in the temperate… Read more
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Thumbs Up!???
Today was an interesting day. Ryleigh did not sleep well last night. She did not fall asleep until 4 a.m. so getting up for meds and visits from doctors and physiotherapists this morning at 8 a.m. was not the most positive time for her — she was a grumpy bear! I don’t blame her –… Read more
WiseMindedLiving 