WiseMindedLiving

Sharing my journey _ one story at a time.

About me:

My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!

This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.

  • Crossing Fingers

    Today Ryleigh had her Remicade treatment. It was a tiring day for all of us as we got little sleep the night before because of our second adventure at the emergency room. Gratefully, Ryleigh’s own doctor was on today and I must say I was relieved to see him. He is experienced and knowledgable and Read more

  • Heading Home for 7 Hours!

    GI fellow came by. Bloodwork looks fine — she is not concerned about bleeding because Ry has remicade. They are thinking of increasing prednisone! Oh my. I am so confused. Sleep, coffee, then I will be better off to discuss with doctors. Read more

  • Another Visit to ER

    Here we are again! We had a seemingly good day. But starting around 9:30 at night Ryleigh started having pain in her tummy again. She was upset because it felt just like the Crohn’s pain she has had before. She was okay dealing with it because she was going to be seeing her doctor the Read more

  • Family Day Weekend

    Chloe, Ryleigh, and I were able to spend the family day weekend together – I missed Dan and Jakob — but it was nice to be the girls. We spent time together trying to renegotiate things as we are in a small space and we are all a bit tuckered out by the events the Read more

  • “Perseverance is not a long race. It is many short races one after another.” – W. Elliot

    Should be thankful that we had 6 hospital/medical free days. Was difficult to make the decision last night to go to emergency. Ryleigh agreed that she should get checked. We took a cab to BCCH Emergency. This is one part of the hospital that I am not familiar with but was impressed by the way Read more

  • Spoke to soon…

    In my last blog I wondered if I was feeling a bit of withdrawal as my adrenaline and cortisol levels have been reduced as we have been 6 days out of hospital. Nope just plain old exhaustion. Right now I am in an emergency room with Ryleigh. She fell asleep about 20 minutes ago. Ryleigh Read more