Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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Another Yield….
My this journey seems to be full of unexpected twists and turns. Today while having a routine pouch change – we are being trained by the ostomy nurse as we need to do it independently before leaving Vancouver – the nurse noticed that Ryleigh’s output was not normal for an ileostomy patient. As well as Read more
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Ryleigh, keep it up!
The last few days have had moments of laughter, tears, frustration, and some anger. One thing that was made very clear to me today by Ryleigh’s psychologist here at BCCH is that Ryleigh’s determination and strong will has helped her make it this far in getting better. Ryleigh has developed some good coping skills for Read more
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Recovery…slow and..??
The recovery process continues to be challenging. This time around Ryleigh is managing her pain better. But, she is way more fatigued and weary. Her sense of perseverance has dwindled and she finds encouragement and being enthusiastic annoying. So we are quietly cheering on the edges of the room. Ryleigh did too much physically yesterday Read more
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Recovery Day 1
Ryleigh had a relatively good night after her surgery. It was much better than her first night after her last surgery. Ryleigh is coping better with the pain and knows that if she moves, rests, moves she will recover faster. She is really chatty and is telling lots of stories and making witty comments. She Read more
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Ryleigh out of surgery!
Ryleigh is out of surgery and did remarkably well. She had two spots that had bowel obstructions due to scarring. They had to remove her stoma and work on the spots and then create a new stoma. She will need to go through the same process of recovery as before. Some concern it could happen again Read more
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Still Waiting…
Ryleigh will be having surgery today. She cannot have surgery until after 3 as they have to make sure she is safe because they had to turn off her anticoagulant. It didn’t happen until 10:30 Ryleigh improved a bit on Sunday but actually went downhill a bit with her output of fluids from ostomy and Read more
WiseMindedLiving 