WiseMindedLiving

Sharing my journey _ one story at a time.

About me:

My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!

This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.

  • Modern Medicine

    This is Ryleigh’s intravenous pole the night before surgery. It is an amazing apparatus. The pumps are mini computers that hold all the information about the medications she is getting, administer the medication based on the correct rate, and let us know if there is an occlusion or something else. She started with one pump Read more

  • Explaining Surgery

    CAREFUL SOME OF THE INFORMATION COULD MAKE YOU A BIT SQUEAMISH I have had numerous people asking about the surgery Ryleigh will be having and what happens afterwards. I asked Ryleigh if this was okay and she thought it was a good idea. She said that she would like people to know what is happening Read more

  • Waiting — patiently!

    We are settled in a room on the same floor she was on in January: 3F. This time one with a window. Today was a refreshing, sunny day and we were lucky to have the sun shining in the room most of the day. It was beautiful here today – no rain and very mild Read more

  • Back in the Hospital

    Ryleigh has been admitted back into BC Children’s Hospital. She will be having surgery we are just not sure when. There are no other options. Tomorrow we meet with the surgeons to talk about the options she will have. Ryleigh will need to have her entire large intestine removed. Right now, that is all we Read more

  • Relief….???

    Tonight we heard from one of the members of the GI team and they have been putting things in motion to get Ryleigh surgery time. It won’t be this weekend but will happen sometime next week….possibly even Monday. The nurse is not sure what surgery Ryleigh will be having but it will definitely be removing Read more

  • Surgery

    It looks like Ryleigh will be required to have surgery to relieve the issues with her bowel. All I know is that the GI team is in the process of making arrangements to have her admitted and start the process towards surgery. Currently, there is a shortage of beds at the hospital and so we Read more