Tonight we heard from one of the members of the GI team and they have been putting things in motion to get Ryleigh surgery time. It won’t be this weekend but will happen sometime next week….possibly even Monday. The nurse is not sure what surgery Ryleigh will be having but it will definitely be removing part or all of her colon. We don’t know if she will need to wear an ostomy bag or not — or whether it will be temporary or permanent. A lot of unknowns. We will spend the weekend at Easter Seal House monitoring Ryleigh and relaxing. If she gets worse they will admit her but the team and I decided that it is best to stay at the house until she needs to be admitted for surgery. More relaxing for her and we can stay with Chloe.
At first Ryleigh was scared but after a bit she started being quite peppy and cheerful. I was a little surprised by the behaviour. I asked her if she was happy to have the surgery and she said oddly she feels a sense of relief. Both her and Chloe are playing a board game and seem to be quite content.
I am once again totally amazed by my daughters. The positive attitude and resilience they both have shown inspires me. Take a moment to embrace the innocence and simplicity of our youth – they see things in a less jaded way and truly have so much to teach all of us.