Category: Uncategorized

  • Complexity….

    Complex seems to be the word that best describes the way life twists and turns for me.  I am in awe of how each way I go I am faced with stress, fear, confusion, pain, sadness, frustration, desperation and worry. However, intertwined with this I feel gratitude, respect, joy, strength,…

  • OOPS…typo….Surgery date is July 29 and….

    So I got a little bit befuddled and the surgery date is not January 29 but JULY 29th….guess I should have a proof reader.   And it is a fistula not a vistula!!!  Oh my….Until next blog…have a happy day!

  • Back Blogging

    Late at night — it has been awhile since I have posted.  For some time I thought things were going smoothly and my life was becoming more calm and thankfully boring!  But alas, that is not the case.  I was so not ready for the phone call I received Thursday…

  • Chloe! I told you I would blog about you, but really…

    My intention of starting the “new” blog was to move away from medical experiences and start reflecting on recovery and living outside of hospitals.  But, Here I am sitting in a hospital room at St. John Hospital feeling surprisingly comfortable in my setting!  Chloe has been admitted as she has…

  • Blogging once again….

    I have finally had a chance to revamp the blog…focusing on life as a whole not just medical events.  This will be a place for me to reflect and share ideas and thoughts about the happenings in my life. I find the blogging process very therapeutic and hope that my…

  • Transition

    We are all transitioning from hospital to home, city to country, and spring to hmmm…winter? Nothing can compare with the comforts of home and being around the people who love and know you the best. We are enjoying it very much. Ryleigh is definitely improving at a faster rate being…

  • Normal???

    We are adjusting to being out of the hospital. It has been odd not to have nurses and doctors waking us up in the morning and machines beeping at all hours. I am surprised what we got used to. I am missing the help for Ryleigh’s care that is only…

  • All of the struggle worth it….

    Ryleigh has been discharged today. We are happy and exhausted. She still needs one on one care as she has difficulty moving and doing things on her own. We are all learning how to deal with her ostomy with cleanings and replacing. A huge learning curve but we are meeting…

  • A FUNTASTIC DAY!

    What an outstanding day. I feel like a 10 tonne weight has been lifted off my shoulders. Life has been altered slightly with a few adjustments as Ryleigh ventures into the real world but they are minor compared to the challenges she has faced over the last two years. Ryleigh…

  • A few more days in hospital….

    So Ryleigh continues to struggle with recovery.  A couple of days ago she started feeling yucky again and stopped eating.  Her stoma and ostomy did not produce enough output resulting in worry from the nurses and some doctors.  She got very nauseous on Thursday and there was thought she had…