Category: Uncategorized
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4 months, 122 days, or 17 weeks & 3 days
It seems like a lifetime ago and yet it feels like I am still living the moment when I said goodbye to my sweet girl, Ryleigh. There is so much that I wish I would change but know that the gift of hindsight is not to change the past but…
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Thankful for moments…
As our first holiday without Ryleigh comes to an end, I reflect on the moments that are so precious that we often take for granted or rush because we have something else to do. I had learned from both Chloe’s cancer and Ryleigh’s illnesses to embrace and appreciate the time together –…
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Ryleigh’s Way…
Thank you to the wonderful town of Vanderhoof for helping us say “See Ya Later” to our darling Ryleigh. It was an amazing night of love, kindness, and compassion. Ryleigh wanted her life to be celebrated and it sure was a night of food, music, laughter, tears, and stories of…
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Saying farewell…you were loved, my darling Ryleigh
My heart is so burdened and heavy. My lovely, caring sparkle of joy is gone. She has gone to some place where there is no pain or struggle. My heart and body aches with the sadness and feeling of emptiness. She was an amazing young woman and I am so…
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Books give me energy!
Yesterday Ryleigh spent the afternoon with two of her doctors. Her rheumatologist and her gastroenterologist. I have to say that these appointments were the most hopeful. There are no answers but their was more information which can always lead to a solution. First, Ryleigh’s gastroenterologist , Dr. Barker discussed with…
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Perfectly Purple!
Ryleigh had a nice day today. She got up early to travel by bus to the beauty salon that we found years ago. We actually met up with our stylist on the bus. Ryleigh decided to go with purple again and it just brightens her up inside and out! We…
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Asking for help
Once again…help needed. I ask for help with a heavy heart but we are facing some more challenges. Looking for possible sponsorship from company’s and businesses….thank you. We will pay it forward once Ryleigh is in remission. Help Ryleigh find Relief from Crohn’s Disease from FundRazr…
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Making a tough day better…
After Ryleigh’s appointment and a bit of rest we ventured out and about to distract ourselves from the disappointing day. Ronald MacDonald House loaned us a wheelchair and so we went to the Skytrain station and found Ryleigh’s favourite restaurant, White Spot! We did not rent a car this trip…
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A Heavier Heart tonight….
I am carrying a heavier hurt tonight – and my heart is hurting. Ryleigh’s doctor agrees that the new medicine is probably not working. That Ryleigh is still struggling and that the other medicine that has just been approved she may not be able to use as she is allergic…
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Never Give Up
This is what Ryleigh told me yesterday — that she is not giving up. Six weeks ago Ryleigh started a “new” medicine, Thalomid. It is the same as the the thalidomide that was banned in Canada because of it causing severe birth defects. It took almost 6 months to get…
WiseMindedLiving 