Category: Uncategorized
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Stepping Up
This blog has focused on Ryleigh’s and my experiences. I wanted to share some stories about Chloe as she has been around for most of the happenings. Many of my friends and family have heard the stories or even experienced the struggles Chloe has with getting out of her comfort…
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PLEAZZZZ CAN I GET SOME ZZZZZ’S
Updating: Ryleigh has only been asleep for a half hour and they are coming in to check her vitals in a few minutes. Her heart rate is up again and they are trying to monitor it. She had the monitor on one hand and her IV in the other hand…
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Ryles?…could you smile for me again? Hmmmm…that is odd
Okay, this had to be one of the weirdest days yet. Ryleigh had a very tiring day. She woke up very dizzy and not able to move around, slept a lot, and then proceeded to start talking a little strangely. The thought that the dizziness and tiredness was because of…
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I feel yucky!
Ryleigh has had a rough morning. She is very dizzy and sick to her stomach. The doctors have come in and she is severely dehydrated again. She has been in her bed all morning just barely able to move and doesn’t even want to watch TV or play her IPOD.…
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Routines..
As we have been at the hospital over a week now — we have established a new routine that we seem to rely on to make it through our day. The routine has changed a bit since Tim has left Vancouver to head back to Prince George and then Hinton.…
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Isn’t this the truth?
Seems like the positive day on Saturday was a good day! Things downhill a bit, this morning Ryleigh has more pain and her hip is really bothering her. Still no definite answers and we are back in the wait and see what happens time. We are grateful to have Ryleigh…
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Small Steps forward…
Some progress has happened this weekend for Ryleigh. Saturday was an excellent day! Ryleigh showed a more energetic and positive demeanor in a variety of different settings. She was visited by Debbie and Nash, Michelle and Tiegan, and Aunt Jennifer, Uncle Dave, and Makenna. She was much more chipper and…
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Ryleigh, this is not a House episode!
Ryleigh has always been a fan of the television show HOUSE. As she has spent quite a bit of time in the hospital and with many doctors – she reflects on every situation wondering if it is similar to a House episode. Episode 1 — AIR Ryleigh’s sensitivity to how…
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Mommy, will I ever get better?
It is about three hours after Ryleigh’s colonoscopy. The results were given to us in a brief form after the procedure. There is definitely inflammation and active disease in the lower part of her colon. No surprise there! Ryleigh basically said I told you to her doctor. The big question…
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Chug it, chug it… I don’t find that funny!
A challenging day today. Ryleigh had a rough time today. She has had two colonoscopies before and knows what to expect but she finds the drinking of the picolax very hard. So her medical team decided to put her on another type of medication to help her clear out for…