Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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Celebrating a milestone…
We spent the last couple of days doing typical things. There were no hospital appointments which was strange but a relief as well. I found a party store that was absolutely amazing…it was like a party dollar store! I enjoyed the time alone preparing for the evening – the saleswoman asked how my day was Read more
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Chloe is turning 16!!
Chloe is very excited…She is turning 16! Unfortunately, this will be the second year that she will spend her birthday in Vancouver. She is making the most of not celebrating with her friends but is especially happy because her Dad is going to make the long drive down with his partner, Tina, to help her Read more
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The moment we have waited for…
Ryleigh was officially engrafted on Tuesday and that enabled her to get some time out and about on the third floor. She ventured to the playroom that was reserved for her as she could not be with anyone else besides Chloe and I. Chloe and Ryleigh played air hockey and Wii…enjoying time together laughing and Read more
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Picture this..
Ryleigh: * focusing on reading a book long enough to enjoy * feeling of calm, pain free, relaxing in the comfort of her hospital bed * learning to embrace the feeling that she may not be in the middle of an IBD (Crohn’s Flare) * joking and laughing; sharing her insights from her book * Read more
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Time to Celebrate!!!!
Ryleigh’s counts are through the roof! Her bone marrow has engrafted and she is on her way to starting step down tomorrow. We are hoping that she will be discharged by the end of the week. Her immune system is back in working order. She needs to take baby steps with getting out of isolation Read more
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Small Gestures = Spirits Lifted!
It is almost the end of Day +15. Ryleigh’s counts have not gone up. I eagerly await the 7AM nurse change so that I can get her blood counts for the day. At 4:00 each morning she has her blood drawn so the results can come in early. But, no changes for over 15 days….such Read more
WiseMindedLiving 