Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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When all else fails…Go with PURPLE!
Dear Family and Friends, Saddened is my heart to say that the hope we had for Ryleigh is at an all time low. Ryleigh and I just returned from another visit to the doctors at BCCH. It was a deflating trip. When Dr. Barker, Ryleigh’s specialist looks at her and looks at the both of Read more
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Discharged today and a treatment plan in place…whew
Ryleigh was discharged today. She is definitely in a full flare as scopes and tests have determined. The disease is in various parts of her digestive system causing her pain, fatigue, and discomfort. She is on a steroid again but it is different then the prednisone as it should not cause as many systemic side Read more
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Ryleigh is back on 3F at BCCH
Disheartened to share this news….Ryleigh’s remission has ended and she is now in a full flare again. Ryleigh started feeling ill mid October and has been getting worse. We originally hoped it was a flu or some other bug that would go away but as the weeks passed she suffered more and more. Ryleigh had Read more
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Ryleigh’s Birthday – Mom Receives the BEST GIFT EVER!!!
After 4 years of pain, hospitals, doctors, surgeries, unknowns, ostomy, stem cell transplant, and not living at home…we celebrate Ryleigh’s 14th birthday with joy and gratitude that her health continues to be improving and that her true sparkly, funny, bright, and carefree self is returning. She is an amazing young woman that keeps surprising me Read more
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The possibilities are endless…
After many attempts and the thought that all possibilities had been explored — we are all on our way to a possible positive outcome. Ryleigh’s stem cell transplant continues to be successful and we are cautiously optimistic…not a cure but a reprieve. Although there is no specific treatment for Chloe – some strategies and coping Read more
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Ground control to Ryleigh…you are ready to land…
Dr. Davis: “Ryleigh do you realize what you have been through?” Ryleigh: “I guess so.” Dr. Davis: “It is like you have been an astronaut out in space for the last three years. Now you are back.” Somewhat isolated, limited physically due to gravity and lack of space, and unable to take part in regular Read more
WiseMindedLiving 