Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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Small Steps forward…
Some progress has happened this weekend for Ryleigh. Saturday was an excellent day! Ryleigh showed a more energetic and positive demeanor in a variety of different settings. She was visited by Debbie and Nash, Michelle and Tiegan, and Aunt Jennifer, Uncle Dave, and Makenna. She was much more chipper and chatty visiting with all of Read more
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Ryleigh, this is not a House episode!
Ryleigh has always been a fan of the television show HOUSE. As she has spent quite a bit of time in the hospital and with many doctors – she reflects on every situation wondering if it is similar to a House episode. Episode 1 — AIR Ryleigh’s sensitivity to how her IV works has been Read more
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Mommy, will I ever get better?
It is about three hours after Ryleigh’s colonoscopy. The results were given to us in a brief form after the procedure. There is definitely inflammation and active disease in the lower part of her colon. No surprise there! Ryleigh basically said I told you to her doctor. The big question is what to do about Read more
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Chug it, chug it… I don’t find that funny!
A challenging day today. Ryleigh had a rough time today. She has had two colonoscopies before and knows what to expect but she finds the drinking of the picolax very hard. So her medical team decided to put her on another type of medication to help her clear out for the scope. Ryleigh has had Read more
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Caring comes in many ways….
I continue to be impressed by the care Ryleigh is receiving. Tonight I gave her a bath and washed her hair. When I was combing it out her nurse offered to french braid her hair so that she wouldn’t have to worry about her hair the next couple of days. Ryleigh felt special and cared Read more
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Busy Day, so far…
Tim and Chloe made it safely down in the nick of time as I have seen the snow that has fallen at home. Ryleigh has enjoyed the company of someone besides mom. Chloe is so good for Ryleigh as she gets Ryleigh playing, laughing, and not just sitting/lying in her bed. Tim is obsessed with Read more
WiseMindedLiving 