Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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Tired of seeing my girl in pain….
It is 2:00 am in the morning and I am by Ryleigh’s bedside. She cannot sleep because she is in pain. She has been vomiting all evening and they have switched back to IV morphine to help her with the pain. Not sure what is going on…they are trying to get her comfortable and then Read more
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Whew…
It has been a whirlwind this week. I thought that as Ryleigh recovered from surgery my responsibilities would decrease as a nurse/advocate and become more mother. However the last few days has been filled with meetings with health care professionals who are helping us make the transition to leaving the hospital. Ryleigh has 5 teams Read more
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Some TLC
Ryleigh’s hair was fixed! Amazing how there are ways to make patients feel more comfortable. This hair washing basin is designed for washing hair in a bed. Ryleigh loved it and her hair became much tamer. Ryleligh is slowly starting to walk more. She is still attached to her IV pole with 6 lines so Read more
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Our Ryleigh is coming back!
With the help of a knowledgeable nurse and a helpful sister and a mom who took a back seat, Ryleigh got out of the room that she has been in for 7 days. She is still unsteady on her feet but is starting to be herself again- how I missed her smile and witty sense Read more
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Every Day is a Start Over….
The last few days have been very draining and trying for all of us. Ryleigh just could not seem to be making progress – her heart rate is up, her appetite has not returned, she was not moving, and was miserable. It was becoming very challenging because she was in so much pain and was Read more
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Distraction
Ryleigh is starting to make a come around. She is still very sore and stuck to a bunch of lines and machines but she had a few moments of distraction. Reluctantly, she participated in an activity with the child life worker. She did not want to do anything but sleep but some coercion and great Read more
WiseMindedLiving 