
Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
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Understanding Chronic/Complex Pain
http://www.youtube.com/watch?v=4b8oB757DKc&feature=youtube_gdata_player One of Chloe’s health care professionals (a psychologist) recommended this video to explain what Chloe is experiencing. It is only 5 minutes long and I liked how it is explained. Important to remember that Chloe is not faking or making up the pain — she is truly experiencing it. Her nervous system is confused Read more
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When it seems the darkest…there is hope
In a few hours Ryleigh will be facing her third surgery this year. She has been brave but last night in the wee hours of the morning she had lots of questions that I could not answer — will this time be the one that fixes everything so I can feel better? Why can’t the Read more
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Complexity….
Complex seems to be the word that best describes the way life twists and turns for me. I am in awe of how each way I go I am faced with stress, fear, confusion, pain, sadness, frustration, desperation and worry. However, intertwined with this I feel gratitude, respect, joy, strength, relief, encouragement and hope. Complex Read more
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OOPS…typo….Surgery date is July 29 and….
So I got a little bit befuddled and the surgery date is not January 29 but JULY 29th….guess I should have a proof reader. And it is a fistula not a vistula!!! Oh my….Until next blog…have a happy day! Read more
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Back Blogging
Late at night — it has been awhile since I have posted. For some time I thought things were going smoothly and my life was becoming more calm and thankfully boring! But alas, that is not the case. I was so not ready for the phone call I received Thursday morning. It was a phone Read more
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Chloe! I told you I would blog about you, but really…
My intention of starting the “new” blog was to move away from medical experiences and start reflecting on recovery and living outside of hospitals. But, Here I am sitting in a hospital room at St. John Hospital feeling surprisingly comfortable in my setting! Chloe has been admitted as she has been having swollen and severe Read more
