
Sharing my journey _ one story at a time.
About me:
My journey over the years included heartache, challenges, and deep grief. However as I move through middle age, I am learning my path has also been full of love, joy, and resilience. And where I go next is up to the Universe!
This blog includes my experiences with having both my daughters dealing with life threatening illness, my career as an educator, and navigating my own health crises. Luckily, I have lots of living to do and many more stories to share.
-
Another Day, Another Doctor errr…Doctors!
Ryleigh woke up in severe pain in her weakened left leg last night. With some pain relief and heat compress on the leg as she tried her best to go back to sleep. Me on the other hand could not sleep as I am going to the blanket warmer every 20 minutes to get her Read more
-
Ok Ryleigh, this could be an House Episode!
We, including Ryleigh, have met with her team of doctors and nurses. She had 7 medical professionals with her today to share what they know so far. The neurologist first spent about 20 minutes explaining to us (without Ryleigh)what has happened in her brain based on the 2 MRI’s she has had. He asked us Read more
-
2nd MRI Done
So Ryleigh’s second brain MRI is finally done. Her team of doctors will meet tomorrow to discuss the results. We have been told that she will be needing more tests in the next few days. She will be visited by other teams of doctors to rule out things. Read more
-
Hurry Up and Wait
This seems to be the motto of our experience. There is a rush to get things done and then we have to wait for results. I don’t mind…it means that they are being thorough. Ryleigh needs to have another MRI today! It should be soon….they want to do this one with the dye to see Read more
-
Not another one! I.V. # 8
Ryleigh has had 8 IV’s in the last two weeks and she is so tired of needles. I continue to be astounded by her courage. Today continues to show me what she is made of! She had her braces taken off, isolated in her room, no food, clear fluids only, MRI, then surprise, surprise, another Read more
-
Really?
Okay, my reflective daughter is wondering if God is testing her. I said if he is, you are acing the exam! At the end of last blogRyleigh and I were having a very disruptive sleep last night with frequent visits from the nurses to check her vitals and see what her cognitive status was. Then Read more
