Positively hopeful…

Our new family motto!
Our new family motto!

We are hopeful that this will be our last long stay in Vancouver.  Ryleigh and Chloe continue to show such courage as they adapt yet again to another home, another routine, and another healthcare team to get to know.  Ryleigh is scheduled for an autologous stem cell transplant. This is not a cure of her Crohn’s disease but it may give her some reprieve so she can grow, develop, and thrive for some time.  She will have her own stem cells harvested and transplanted in her after she has received chemotherapy to get rid of the overactive cells that are currently attacking her digestive system.  As this transplant is done with cancer patients  Ryleigh will be on the oncology floor for the actual transplant.  She will be admitted on January 2 to start the harvesting process.    I will explain the process in more detail in later posts as I research and learn more about it.

We are settled in a quaint little apartment in the Mount Pleasant area of Vancouver.  We have made it as home like as possible.  I had to make some decisions about where we could stay that would be comfortable for Chloe and Ryleigh. Chloe is still struggling with her pain – the syndrome she has is relentless.  I am so amazed at how she manages when her body is fighting her every step of the way.  Unfortunately, stress does contribute to opening the pain gates.  I am grateful for this space we have to help her remain relaxed and calm.  It is also  somewhat isolated from large crowds of  people as we will need to be as “germ” free as possible when Ryleigh begins her transplant process.    Hopefully, the family residence program will help out with the cost of the apartment but…they are limited in the amount of time  they can support us.

I was sad to say goodbye to my class and the Evelyn Dickson School community.  Being surrounded by children that are healthy and joyful was good for my spirits…it made me realize what I am trying to get back for my daughters.  My students were so kind and generous to me each day – it was such a delight showing up to work every day. Over the last week – my students were hoping that a Christmas Miracle would happen and Ryleigh would get better so that I can return in January.  I do not think that will happen but I am hopeful that this incredible experimental procedure offered to her by BCCH will be the miracle and we will be returning to our hometown in March.

I will be blogging regularly again and look forward to connecting with family, friends, and others.  Blogging allows me to process, relay information, communicate with others, and feel connected to those that care about us.  I am glad to have a blogging history of the events…I have referred back to some previous blogs for inspiration and information.  We will continue to have hope, faith, and courage to accept our journey.

3 responses to “Positively hopeful…”

  1. Kirstin Johns-Bell Avatar
    Kirstin Johns-Bell

    You are all ALWAYS in our hearts, thoughts and prayers! We love you!!!

  2. Hi Jo, Ryleigh and Chloe – We look forward to seeing some pictures from your new apartment and neighbourhood! Ryleigh, we wish you strength and determination as you face a new round of treatments and new people on your team. Chloe and Jo, we know you are facing many challenges and wish you strength and determination, too. We are thinking of you all as you continue your journey together.

    1. Thanks to the Inden clan! We will take some pictures of our new “home” and post them. We are feeling settled and getting into a routine. Looking forward to Christmas and then waiting patiently to get the show on the road so that Ryleigh can get healthy. Take care…miss all of you!

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