Category: Uncategorized
-
Chloe is turning 16!!
Chloe is very excited…She is turning 16! Unfortunately, this will be the second year that she will spend her birthday in Vancouver. She is making the most of not celebrating with her friends but is especially happy because her Dad is going to make the long drive down with his…
-
Picture this..
Ryleigh: * focusing on reading a book long enough to enjoy * feeling of calm, pain free, relaxing in the comfort of her hospital bed * learning to embrace the feeling that she may not be in the middle of an IBD (Crohn’s Flare) * joking and laughing; sharing her…
-
Time to Celebrate!!!!
Ryleigh’s counts are through the roof! Her bone marrow has engrafted and she is on her way to starting step down tomorrow. We are hoping that she will be discharged by the end of the week. Her immune system is back in working order. She needs to take baby steps…
-
Small Gestures = Spirits Lifted!
It is almost the end of Day +15. Ryleigh’s counts have not gone up. I eagerly await the 7AM nurse change so that I can get her blood counts for the day. At 4:00 each morning she has her blood drawn so the results can come in early. But, no…
-
It takes time…
Waiting for Ryleigh’s white blood cells and neutrophils start showing in her blood counts is really like watching a pot boil. We know it will happen – it just seems to be taking so long. To help see what is happening each day we chart on her big calendar. Her…
-
“One Tough Cookie”
Ryleigh finished her last round of chemotherapy yesterday. Because this is a protocol oncology is not familiar with they are not sure when her bone marrow will engraft. However, the nurses and doctors are amazed by her strength and how well she is managing through the pain and other yucky…
-
Day +4
It is Day +4, four days after the stem cell transplant. Times are still challenging but we continue to make it through each day…looking forward to each new day as we get closer to Ryleigh’s stem cells finding their way to her bone marrow and creating a whole new immune…
-
Transplant Super Star!
Still without my own computer – should be back in the next couple of days. Have to quickly write something…before my day starts and it is non-stop for me. I am working harder now then I have ever worked. I am on call all day and night. Right now, Ryleigh…
-
Chloe and Ryleigh are truly best sister friends forever….
I apologize for the delay on posting updates. As usual bad timing seems to be my path in life….my computer decided to not work for me…the keyboard was selective in letters I could use and as a result my writing became quite cryptic! So, the computer is getting fixed and…
WiseMindedLiving 