Tag: crohns disease
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The moment we have waited for…
Ryleigh was officially engrafted on Tuesday and that enabled her to get some time out and about on the third floor. She ventured to the playroom that was reserved for her as she could not be with anyone else besides Chloe and I. Chloe and Ryleigh played air hockey and Wii…enjoying time together laughing and…
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Waiting….Waiting….Waiting….
I have been told in the past that I have the ability to show lots of patience…however, this time my patience is being tested. It is an odd experience waiting for your child’s bone marrow to stop producing the cells that sustain their life. As we are now a week into Ryleigh having her infusion…
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A Journey of Hope
We are settled in a Vancouver hotel the night before my daughter’s second treatment of Remicade to help manage her Crohn’s disease. There is no cure for Chron’s but this may help her feel better. It is a challenging disease because every persons symptoms and treatments are different. She is nervous about the I V…
WiseMindedLiving 