Author: IntheMiddle
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Chloe is turning 16!!
Chloe is very excited…She is turning 16! Unfortunately, this will be the second year that she will spend her birthday in Vancouver. She is making the most of not celebrating with her friends but is especially happy because her Dad is going to make the long drive down with his partner, Tina, to help her…
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The moment we have waited for…
Ryleigh was officially engrafted on Tuesday and that enabled her to get some time out and about on the third floor. She ventured to the playroom that was reserved for her as she could not be with anyone else besides Chloe and I. Chloe and Ryleigh played air hockey and Wii…enjoying time together laughing and…
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Picture this..
Ryleigh: * focusing on reading a book long enough to enjoy * feeling of calm, pain free, relaxing in the comfort of her hospital bed * learning to embrace the feeling that she may not be in the middle of an IBD (Crohn’s Flare) * joking and laughing; sharing her insights from her book *…
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Time to Celebrate!!!!
Ryleigh’s counts are through the roof! Her bone marrow has engrafted and she is on her way to starting step down tomorrow. We are hoping that she will be discharged by the end of the week. Her immune system is back in working order. She needs to take baby steps with getting out of isolation…
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Small Gestures = Spirits Lifted!
It is almost the end of Day +15. Ryleigh’s counts have not gone up. I eagerly await the 7AM nurse change so that I can get her blood counts for the day. At 4:00 each morning she has her blood drawn so the results can come in early. But, no changes for over 15 days….such…
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It takes time…
Waiting for Ryleigh’s white blood cells and neutrophils start showing in her blood counts is really like watching a pot boil. We know it will happen – it just seems to be taking so long. To help see what is happening each day we chart on her big calendar. Her hemoglobin has stayed at mid…
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“One Tough Cookie”
Ryleigh finished her last round of chemotherapy yesterday. Because this is a protocol oncology is not familiar with they are not sure when her bone marrow will engraft. However, the nurses and doctors are amazed by her strength and how well she is managing through the pain and other yucky symptoms. She is maintaining her…
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Day +4
It is Day +4, four days after the stem cell transplant. Times are still challenging but we continue to make it through each day…looking forward to each new day as we get closer to Ryleigh’s stem cells finding their way to her bone marrow and creating a whole new immune system. White blood cells (WBCs)are…
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Transplant Super Star!
Still without my own computer – should be back in the next couple of days. Have to quickly write something…before my day starts and it is non-stop for me. I am working harder now then I have ever worked. I am on call all day and night. Right now, Ryleigh is feeling okay as the…
WiseMindedLiving 