Author: IntheMiddle
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Fewer Trips to Hospital…
Ryleigh was able to get a PICC line yesterday. I am so appreciative to the health care teams in Prince George and Vanderhoof for making it happen. We can now spend more time at home. I was trained so that I can administer her anti viral medication at home. Hopefully it starts to work as…
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An acute, painful inflammation of the nerve ganglia…
Ryleigh is at St. John hospital in Vanderhoof receiving an anti viral medication to help reduce the symptoms and further blisters and rash from the varicella-zoster virus. It is more commonly known as shingles. She started having discomfort a week ago. After some visits to doctor’s office and emergency as well as discussing with her…
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A moment of hope…pictures do say it all…
Thanks to the wonderful team Kevin and Laurie at Wallace Studios who allowed us to have this moment of hope last summer when we had some time that was not focused on illness and health issues. Instead we enjoyed our new back yard on a lovely summer evening. I have it now placed…
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When all else fails…Go with PURPLE!
Dear Family and Friends, Saddened is my heart to say that the hope we had for Ryleigh is at an all time low. Ryleigh and I just returned from another visit to the doctors at BCCH. It was a deflating trip. When Dr. Barker, Ryleigh’s specialist looks at her and looks at the both of…
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Discharged today and a treatment plan in place…whew
Ryleigh was discharged today. She is definitely in a full flare as scopes and tests have determined. The disease is in various parts of her digestive system causing her pain, fatigue, and discomfort. She is on a steroid again but it is different then the prednisone as it should not cause as many systemic side…
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Ryleigh is back on 3F at BCCH
Disheartened to share this news….Ryleigh’s remission has ended and she is now in a full flare again. Ryleigh started feeling ill mid October and has been getting worse. We originally hoped it was a flu or some other bug that would go away but as the weeks passed she suffered more and more. Ryleigh had…
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Ryleigh’s Birthday – Mom Receives the BEST GIFT EVER!!!
After 4 years of pain, hospitals, doctors, surgeries, unknowns, ostomy, stem cell transplant, and not living at home…we celebrate Ryleigh’s 14th birthday with joy and gratitude that her health continues to be improving and that her true sparkly, funny, bright, and carefree self is returning. She is an amazing young woman that keeps surprising me…
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The possibilities are endless…
After many attempts and the thought that all possibilities had been explored — we are all on our way to a possible positive outcome. Ryleigh’s stem cell transplant continues to be successful and we are cautiously optimistic…not a cure but a reprieve. Although there is no specific treatment for Chloe – some strategies and coping…
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Ground control to Ryleigh…you are ready to land…
Dr. Davis: “Ryleigh do you realize what you have been through?” Ryleigh: “I guess so.” Dr. Davis: “It is like you have been an astronaut out in space for the last three years. Now you are back.” Somewhat isolated, limited physically due to gravity and lack of space, and unable to take part in regular…
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Celebrating a milestone…
We spent the last couple of days doing typical things. There were no hospital appointments which was strange but a relief as well. I found a party store that was absolutely amazing…it was like a party dollar store! I enjoyed the time alone preparing for the evening – the saleswoman asked how my day was…
WiseMindedLiving 