Month: February 2013
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Surgery
It looks like Ryleigh will be required to have surgery to relieve the issues with her bowel. All I know is that the GI team is in the process of making arrangements to have her admitted and start the process towards surgery. Currently, there is a shortage of beds at the hospital and so we…
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Crossing Fingers
Today Ryleigh had her Remicade treatment. It was a tiring day for all of us as we got little sleep the night before because of our second adventure at the emergency room. Gratefully, Ryleigh’s own doctor was on today and I must say I was relieved to see him. He is experienced and knowledgable and…
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Heading Home for 7 Hours!
GI fellow came by. Bloodwork looks fine — she is not concerned about bleeding because Ry has remicade. They are thinking of increasing prednisone! Oh my. I am so confused. Sleep, coffee, then I will be better off to discuss with doctors.
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Another Visit to ER
Here we are again! We had a seemingly good day. But starting around 9:30 at night Ryleigh started having pain in her tummy again. She was upset because it felt just like the Crohn’s pain she has had before. She was okay dealing with it because she was going to be seeing her doctor the…
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Family Day Weekend
Chloe, Ryleigh, and I were able to spend the family day weekend together – I missed Dan and Jakob — but it was nice to be the girls. We spent time together trying to renegotiate things as we are in a small space and we are all a bit tuckered out by the events the…
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“Perseverance is not a long race. It is many short races one after another.” – W. Elliot
Should be thankful that we had 6 hospital/medical free days. Was difficult to make the decision last night to go to emergency. Ryleigh agreed that she should get checked. We took a cab to BCCH Emergency. This is one part of the hospital that I am not familiar with but was impressed by the way…
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Spoke to soon…
In my last blog I wondered if I was feeling a bit of withdrawal as my adrenaline and cortisol levels have been reduced as we have been 6 days out of hospital. Nope just plain old exhaustion. Right now I am in an emergency room with Ryleigh. She fell asleep about 20 minutes ago. Ryleigh…
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Slow and Steady…
Another day closer to us coming home. We had a very laid back day – I seem to have a bit of a bug although I am wondering if it is adrenaline withdrawal?!!! The last weeks have been so intense that just having some down time is a different feeling. Ryleigh and I ventured out…
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We all need something to lean on….
Today was a wet and rainy day but it wasn’t cold and snowy. Ryleigh was up very late last night — we got watching some television and she got really into reading Catching Fire (part 2 of the Hunger Games series). The steroid, prednisone, keeps her up too even when she is feeling tired. Last…
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Don’t mess with a girl on prednisone and her pancakes!
It is so odd to go from having Ryleigh only eating 500 calories a day to 500 calories as a snack! The change in her eating habits because of prednisone is unreal. One morning she ate 3 pancakes, 3 eggs, and 6 sausages! We travel to IHOP every morning on the #17 bus so that…
WiseMindedLiving 