Relief….???


Tonight we heard from one of the members of the GI team and they have been putting things in motion to get Ryleigh surgery time. It won’t be this weekend but will happen sometime next week….possibly even Monday. The nurse is not sure what surgery Ryleigh will be having but it will definitely be removing part or all of her colon. We don’t know if she will need to wear an ostomy bag or not — or whether it will be temporary or permanent. A lot of unknowns. We will spend the weekend at Easter Seal House monitoring Ryleigh and relaxing. If she gets worse they will admit her but the team and I decided that it is best to stay at the house until she needs to be admitted for surgery. More relaxing for her and we can stay with Chloe.

At first Ryleigh was scared but after a bit she started being quite peppy and cheerful. I was a little surprised by the behaviour. I asked her if she was happy to have the surgery and she said oddly she feels a sense of relief. Both her and Chloe are playing a board game and seem to be quite content.

I am once again totally amazed by my daughters. The positive attitude and resilience they both have shown inspires me. Take a moment to embrace the innocence and simplicity of our youth – they see things in a less jaded way and truly have so much to teach all of us. positive-attitude

About WiseMindedLiving

Mindful living and a thoughtful attitude are the focus for Johanna as she navigates the paths of life that are sometimes daunting. Her journey as a mother and educator are interwoven as they are the primary motivators for her stories, reflections, and wondering.

12 thoughts on “Relief….???

  1. I guess that it always the uncertainty that is the hardest. I am glad the three of you are together! In Vancouver next weekend for meetings. Hope I can stop in!

  2. I am thankful you and the girls are able to be together through this roller coaster ride, Jo. Praying for wisdom for Ryleigh’s medical team, strength and encouragement for you, and quick healing for Ryleigh. You are so strong to always see the positive version, Jo.

  3. Oh my! Your girls are amazing! I hope this turns out to be the answer Ryleigh needs to feel good again. The mosquito cartoon was great!!
    Love and hugs!!

  4. The unknown is the hardest. My thoughts and prayers are with you. And I now have a new respect for mosquitoes!! Well sort of! 🙂

  5. Kids are pretty amazing. I throughly enjoyed having Chloe here, she is so wise and mature and I was so grateful to spend time with her. I am sure the relief of knowing that getting the “diseased part out” may really help is a comfort for Ryleigh, but a little scary for mom. I will be in touch and I can help out in anyway.
    LOVE YOU!

    1. Don’t let them grow up before they have too. Act your age means be a child! It is so important that our children learn that our lives are precious and to live each day with eagerness and possibility.

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