Month: February 2013
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Gratitude
I have had a challenging time but hold onto these ideals to make it through each challenging moment. I feel so much love and gratitude towards all my friends, family, colleagues, community members, students, parents, doctors, nurses, and many others who have helped our family. It is what gets me through the tougher moments. Love…
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Invasion….
Ryleigh’s room has been invaded by her Intravenous Pole! It takes up half of the room. She has been given more medicine to help with her pain but unfortunately her PICC line could not take anymore volume. So, she had to have another IV in her arm. I have lost count but I think we…
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A Challenging Cycle
I wish for once things went smoothly for my dear Ryleigh. It has been 36 hours since the finish of her surgery. She has not moved from her flat on the back position she arrived in. She is in pain and tries to use her pain pump but the medicine makes her extremely sick to…
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2nd Attempt: Keep calm and carry on
Ryleigh has been recovering now for about 5 hours. It is interesting how the post operative truth comes about after the operation! Ryleigh is not as comfortable as I thought she would be. She has a hard time talking and gets very frustrated if we try to talk with her. She has phlegm in her…
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Surgery Over!
Ryleigh’s surgery went really well. She is in her own room on 3R and continues to be well taken care of. Her surgery was 41/2 hours from start to finish. The surgeons shared that everything went as planned. The only little blip is that her hemoglobin counts had dropped this morning and so she had…
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Modern Medicine
This is Ryleigh’s intravenous pole the night before surgery. It is an amazing apparatus. The pumps are mini computers that hold all the information about the medications she is getting, administer the medication based on the correct rate, and let us know if there is an occlusion or something else. She started with one pump…
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Explaining Surgery
CAREFUL SOME OF THE INFORMATION COULD MAKE YOU A BIT SQUEAMISH I have had numerous people asking about the surgery Ryleigh will be having and what happens afterwards. I asked Ryleigh if this was okay and she thought it was a good idea. She said that she would like people to know what is happening…
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Waiting — patiently!
We are settled in a room on the same floor she was on in January: 3F. This time one with a window. Today was a refreshing, sunny day and we were lucky to have the sun shining in the room most of the day. It was beautiful here today – no rain and very mild…
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Back in the Hospital
Ryleigh has been admitted back into BC Children’s Hospital. She will be having surgery we are just not sure when. There are no other options. Tomorrow we meet with the surgeons to talk about the options she will have. Ryleigh will need to have her entire large intestine removed. Right now, that is all we…
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Relief….???
Tonight we heard from one of the members of the GI team and they have been putting things in motion to get Ryleigh surgery time. It won’t be this weekend but will happen sometime next week….possibly even Monday. The nurse is not sure what surgery Ryleigh will be having but it will definitely be removing…
WiseMindedLiving 