Month: January 2013
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Busy Day, so far…
Tim and Chloe made it safely down in the nick of time as I have seen the snow that has fallen at home. Ryleigh has enjoyed the company of someone besides mom. Chloe is so good for Ryleigh as she gets Ryleigh playing, laughing, and not just sitting/lying in her bed. Tim is obsessed with…
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Cravings
I can tell that Ryleigh is responding well to the Prednisone – the steroid she is taking to help bring down the inflammation caused by Crohn’s. Firstly, she got up this morning and had a smile on her face. She was chipper and even played a little joke on me and giggled. It was delightful.…
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Update for January 7, 2013
Ryleigh has had a few more positive and upbeat moments. She is eating a bit more (thank you prednisone for giving her food cravings). She laughed and smiled a few times and even cracked a few of her corny puns! She is getting homesick but tries to make the most of being here. The doctor…
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On the lighter side…
A few things today gave us a bit of chuckle:) Luckily I am allowed to use the shower in Ry’s room. Typically, I use a special shampoo for my thick, coarse, frizzy, curly hair. But, no luggage on the plane please! So the only shampoo they could find me here was baby shampoo. Now it…
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Mom, your stepping on my I V again!
Anyone living, working, coaching, teaching, existing with preteens or almost teens knows that it takes loads of patience to understand the perspective the said youngster is experiencing. Their view of the world is slightly different than the rest of us. I am not saying is wrong just different. Now, my darling daughter, Ryleigh, is typically…
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Small Victories!
Victory #1: The up swelling of support from friends and family all around the world! The contact and comments of support, love, and kindness help me manage my own feelings of homesickness, fear, helplessness, and isolation. I look forward to seeing the icons that I have a message or a comment from someone I know.…
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Bumpy Landing
Ryleigh made a 5 hour journey on 4 ambulances and one air ambulance to make the trip to BC Children’s Hospital. It was quite the trip but relieved to finally be in the best place possible to get her better. She has settled in nicely to the wonderful care of the staff on 2B which…
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A Journey has twists and turns
It has been a couple of weeks since my last update. Ryleigh had received her last treatment of Remicade and we hoped that our Christmas wishes would be answered and this treatment would work. Unfortunately, it did not seem to take hold. Ryleigh got really sick over the holidays and she ended up in our…
WiseMindedLiving 