Month: January 2013
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PLEAZZZZ CAN I GET SOME ZZZZZ’S
Updating: Ryleigh has only been asleep for a half hour and they are coming in to check her vitals in a few minutes. Her heart rate is up again and they are trying to monitor it. She had the monitor on one hand and her IV in the other hand and was quite upset about…
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Ryles?…could you smile for me again? Hmmmm…that is odd
Okay, this had to be one of the weirdest days yet. Ryleigh had a very tiring day. She woke up very dizzy and not able to move around, slept a lot, and then proceeded to start talking a little strangely. The thought that the dizziness and tiredness was because of her being severely dehydrated as…
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I feel yucky!
Ryleigh has had a rough morning. She is very dizzy and sick to her stomach. The doctors have come in and she is severely dehydrated again. She has been in her bed all morning just barely able to move and doesn’t even want to watch TV or play her IPOD. You know she is feeling…
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Routines..
As we have been at the hospital over a week now — we have established a new routine that we seem to rely on to make it through our day. The routine has changed a bit since Tim has left Vancouver to head back to Prince George and then Hinton. Now the morning routine of…
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Isn’t this the truth?
Seems like the positive day on Saturday was a good day! Things downhill a bit, this morning Ryleigh has more pain and her hip is really bothering her. Still no definite answers and we are back in the wait and see what happens time. We are grateful to have Ryleigh being taken care of so…
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Small Steps forward…
Some progress has happened this weekend for Ryleigh. Saturday was an excellent day! Ryleigh showed a more energetic and positive demeanor in a variety of different settings. She was visited by Debbie and Nash, Michelle and Tiegan, and Aunt Jennifer, Uncle Dave, and Makenna. She was much more chipper and chatty visiting with all of…
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Ryleigh, this is not a House episode!
Ryleigh has always been a fan of the television show HOUSE. As she has spent quite a bit of time in the hospital and with many doctors – she reflects on every situation wondering if it is similar to a House episode. Episode 1 — AIR Ryleigh’s sensitivity to how her IV works has been…
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Mommy, will I ever get better?
It is about three hours after Ryleigh’s colonoscopy. The results were given to us in a brief form after the procedure. There is definitely inflammation and active disease in the lower part of her colon. No surprise there! Ryleigh basically said I told you to her doctor. The big question is what to do about…
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Chug it, chug it… I don’t find that funny!
A challenging day today. Ryleigh had a rough time today. She has had two colonoscopies before and knows what to expect but she finds the drinking of the picolax very hard. So her medical team decided to put her on another type of medication to help her clear out for the scope. Ryleigh has had…
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Caring comes in many ways….
I continue to be impressed by the care Ryleigh is receiving. Tonight I gave her a bath and washed her hair. When I was combing it out her nurse offered to french braid her hair so that she wouldn’t have to worry about her hair the next couple of days. Ryleigh felt special and cared…
WiseMindedLiving 