Month: January 2013
Ryleigh has had a good night. She made it through with flying colors. Keep the positive thoughts and prayers flying her way -it is working!
When things get tough, the tough go to ice cream!
This post title was brought to you by Ryleigh! She came up with this at 10:00 tonight after the hardest day she has had yet. 15 doctors A lumbar puncture An ultra sound of her leg An echo cardiogram of her heart A second I.V. in her foot And the harsh reality of what is…
Ryleigh has shown me the importance of the small moments in a day that are joyful and happy. She is still embarrassed about her palsy on the right side of her face but still cracks the funny jokes, smiles her half smile, and gives me a wink — so uplifting. Last night she was given…
Another Day, Another Doctor errr…Doctors!
Ryleigh woke up in severe pain in her weakened left leg last night. With some pain relief and heat compress on the leg as she tried her best to go back to sleep. Me on the other hand could not sleep as I am going to the blanket warmer every 20 minutes to get her…
Ok Ryleigh, this could be an House Episode!
We, including Ryleigh, have met with her team of doctors and nurses. She had 7 medical professionals with her today to share what they know so far. The neurologist first spent about 20 minutes explaining to us (without Ryleigh)what has happened in her brain based on the 2 MRI’s she has had. He asked us…
2nd MRI Done
So Ryleigh’s second brain MRI is finally done. Her team of doctors will meet tomorrow to discuss the results. We have been told that she will be needing more tests in the next few days. She will be visited by other teams of doctors to rule out things.
Hurry Up and Wait
This seems to be the motto of our experience. There is a rush to get things done and then we have to wait for results. I don’t mind…it means that they are being thorough. Ryleigh needs to have another MRI today! It should be soon….they want to do this one with the dye to see…
Not another one! I.V. # 8
Ryleigh has had 8 IV’s in the last two weeks and she is so tired of needles. I continue to be astounded by her courage. Today continues to show me what she is made of! She had her braces taken off, isolated in her room, no food, clear fluids only, MRI, then surprise, surprise, another…
Okay, my reflective daughter is wondering if God is testing her. I said if he is, you are acing the exam! At the end of last blogRyleigh and I were having a very disruptive sleep last night with frequent visits from the nurses to check her vitals and see what her cognitive status was. Then…
This blog has focused on Ryleigh’s and my experiences. I wanted to share some stories about Chloe as she has been around for most of the happenings. Many of my friends and family have heard the stories or even experienced the struggles Chloe has with getting out of her comfort zone. She is cautious and…