Month: January 2013
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Thumbs Up!???
Today was an interesting day. Ryleigh did not sleep well last night. She did not fall asleep until 4 a.m. so getting up for meds and visits from doctors and physiotherapists this morning at 8 a.m. was not the most positive time for her — she was a grumpy bear! I don’t blame her –…
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A Hopeful Day!
This is how our day ended today: <! Ryleigh with her rosie cheeks. She is starting to show the side effects of prednisone – her cheeks are puffy. She hates that but I think it makes her look healthier! Ryleigh chooses to do artwork especially painting to relax as she had another busy day. The…
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Another Blip on the Radar…
After a quiet weekend this was a bit more of an active day. Ryleigh had visits from some of her medical team. Her leg has reduced in swelling on her bottom half of her leg. Her upper thigh is still quite swollen but the pain has reduced significantly. Her blood clot will take months to…
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The love of a dog…Jakob
Our Jakie is such gentle and kind dog. I would have never thought that when Chloe showed me the website with Jakob as a puppy and convinced me that he would be a good addition to our family. Little did I know that visiting with Jakob would be the incentive for Ryleigh to get out…
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Calm Day…Finally
Today was a much calmer day. Ryleigh has stabilized and is more animated and cheery. We spent the day hanging out – being a Saturday we did not have as many visits from doctors as during the week. There has been a switch over of doctors, fellows, and residents for most of the teams Ryleigh…
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Daily Life has changed…and progress update
I apologize for the delay in my writing. It is amazing to me how things get busy yet it feels like I don’t accomplish much. Our daily routine is so much different but yet it surprises me how patterns develop in the way we behave. Typically I am up sometime before 7. I have always…
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Small Steps
Ryleigh has been ever more courageous. She has realized that pain management is not about being weak or not “sucking it up”. In fact, she realizes that asking for help and receiving help is a brave thing to do. Ryleigh is now on some managed pain relief and she is more active and upbeat. Tonight…
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Doctors are certain….they are uncertain!
There was a collaboration meeting today of some of the major teams involved in Ryleigh’s care. They have determined that they know that right now, they are not sure what has caused her medical issues. They are still investigating and that the results are going to take awhile to compile. They have different theories but…
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24 hours with no surprises!!!
We have made it without any new surprises! What a relief. Ryleigh’s pain is being managed. She is much more comfortable and is less irritable. We requested that Ryleigh have a more quieter atmosphere. Loads of doctors don’t crowd her room now. We have lots of discussions in the hall. Ryleigh’s care is being looked…
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Keeping Positive….even when I want to scream!!!
I learned a lot about myself in the last 24 hours. I learned that we all have limitations but they do not define the true essence of who we are. Ryleigh finally settled down to sleep around 5:30 this morning She is struggling physically and now emotionally about her illness. Due to many reasons including…
WiseMindedLiving 